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HEALTH NEWS: Desperate parents turn to medical marijuana to help sick baby
Two bills that would legalize a form of medical marijuana in the Sunshine State are making their ways through the legislature.
Representative Matt Gaetz is sponsoring a bill that would pave the way to legalize that drug, known as "Charlotte's Web."
Parents throughout the state say a chemical found in it could help their children who suffer from seizures.
Kids like Rayanne Moseley of Gulf Breeze who suffers from hundreds of seizures a week, from a rare form of epilepsy called Dravet Syndrome.
But it's not just here in Florida.
As Maddelyn Patrick sleeps as many as 19 hours a day.
Instead of learning to walk and talk her little world revolves around hospitals and drugs.
Addy loves you.
Meagan and Ken Patrick say - at three and a half months old, Addy was diagnosed with Optic Nerve Hypoplasia.
They say she's legally blind, has hormonal dysfunction, and brain malformation - which causes severe epilepsy.
"It's the worst kind of hell you can ever imagine to see your child in pain, and there's nothing you can do about it."
She has up to 12 seizures a day... Her parents say it depends on how much medicine is in a
This is her Kepra...
The Patricks have tried several different drugs.
They say none of them stop the seizures - and instead they diminish Addy's quality of life.
She takes these medicines daily
In August, Addy switched medications yet again... Started an extreme diet that mimics starvation... And was sent home, to simply wait for results.
Now, the Patricks are pursuing medical marijuana for their toddler.
It sounds crazy and when Ken's parents first suggested it, I told them no way!
Medical marijuana has been legal in Maine since 2009...And Addy is certified to use it.
According to the Department of Health and Human Services, a patients doctor decides whether they would benefit based on the list of qualifying conditions.
If the patient is a minor.. they need the opinion of a second doctor - one selected by the state's
Division of Licensing and Regulatory Services.
The Patricks- and other Mainers dealing with epilepsy- want a strain of medical marijuana that has few tetrahydrocannabinols- or THC...And lots of cannabidiols or CBD.
The THC is what gets you high...The CBD has been proven to help control seizures.
"Um, I really feel like we're venturing into the wild, wild west of medicine."
And the west is where the Patricks are headed.
Five brothers in Colorado have developed a strain of medical marijuana called Charlotte's Web.
It's named for 5 year old Charlotte Figi- whose family says her seizures were reduced by 90 % in just three months.
"We've found that consistent, safe, supply of high quality product that we're looking for Addelyn."
The Patricks are on a waiting list.
When it's Addy's turn... They'll go to Colorado... and if the medical marijuana works, they won't be able to come home.
While it's legal in Maine and Colorado... Medical marijuana is illegal under federal law, so marijuana of any kind can't cross state lines.
For now, the Patricks wait.
As soon as I get an email saying I have medication available for my daughter, I'll be on the first plane out of here.
Maissa Bodnar explains, a family in Maine is hoping that the strain becomes legal so their daughter has a brighter future. More health related stories